Our vision is to make rare cancers curable
Focussed on the needs of people with rare cancer
People affected by rare cancer are at the heart of all that we do. RareCan gives its members the opportunity to volunteer to take part in research which can truly make a difference.
Rarer cancers and their
Rarer cancers are actually quite common – and yet have worse outcomes than more common cancers.
Cancers with an incidence of less than 60 per million are defined as ‘rare’. They represent about a fifth of all cases of cancer presenting in the UK..
This group of rarer cancers includes over 180 different tumour types.
Overall these rarer cancers have a significantly worse 5-year survival rate compared to more common cancers (47% v 65%) and over half of all cancer deaths result from rarer forms of cancer.
For more information, see – Rare cancers are not so rare: The rare cancer burden in Europe: Gatta et al. EJC 47 (2011)
Register your Interest
Together we can make rare cancers curable
I have a cancer diagnosis
If you have a cancer diagnosis or you are the parent of a child with a cancer diagnosis, please start here.
I'm a supporter
If you’re a friend or family member of someone with cancer, a nurse, an oncologist, an activist, a fundraiser or you’d simply like to help, please start here.
I'm a researcher
If you are interested in setting up a research project or clinical trial aimed at improving the care people affected by rare cancer receive please start here