Rare Cancer Community

You can help us grow our rare cancer communities

With over 180 rare types of cancer, the more people we have with the same rare cancer type, the faster we can connect them with opportunities to help improve treatments and accelerate research. Join RareCan today and help us to grow our rare cancer communities.

Our partners

We have a growing network of patient support group and charity partnerships, working together to support people with rare cancers and accelerate research. If you would like us to connect with a support group you have found helpful, please give further details here.

Our rare cancer communities

working together with our partners, our membership with these rare cancers is growing

Start building your own cancer community today!

I joined RareCan to support research into my extremely rare and highly aggressive subtype of uterine cancer

I joined RareCan as it may help other people in the future

I joined RareCan because they have the solution to the challenges faced within rare cancer research

I joined RareCan to get action and support and research on rare cancers

If my husband was alive today, he would encourage people to take part in research as you never know if you will ever need it in the future

While there is no guarantee that we will immediately get access to a trial or new drug, by being members of RareCan, it could very well help our cause to progress this area of research. You need to be in it to win it!

Over 1,300 members

Across 71 cancers

Sally's story

During the Pandemic, I was diagnosed with a very rare and aggressive type of soft tissue cancer called angiosarcoma which was most likely caused by..

Kathy's story

In December 2020, Kathy was diagnosed with Stage 3 Vaginal Cancer, which is exceedingly rare. I was not shocked about the cancer diagnosis..

RareCan partners with Blood Cancer UK

By RareCan Team

RareCan has partnered with leading UK-based charity, Blood Cancer UK, to support the growth of its patient membership and the rapid delivery of clinical trials focussed on the prevention, diagnosis, or treatment of blood cancers..

RareCan partners with GIST Cancer UK

By RareCan Team

RareCan’s collaboration with the PAWS GIST Clinic and GIST Cancer UK will help us to involve people with rare cancers in shaping how RareCan works. They will give us feedback on the quality of the information we offer and help us to improve upon it for future members..