Privacy by design

Data Protection Officer appointed

We are very pleased to welcome Lindsay Shure into the RareCan team as our Data Protection Officer. Lindsay has vast experience in overseeing good goverance of data for research related projects, having worked in similar roles at University College London and the MRC Clinical Trials Unit. Since the introduction of GDPR Lindsay has become an independent consultant supporting small and medium sized enterprises to ensure the have the very best standards of data privacy and information governance. Managing our members data appropriately is absolutely central to RareCan’s mission, so we have appointed Lindsay to lead our ‘privacy by design’ work to develop the RareCan service to the best standard and undertake the role of Data Protection Officer as required by the Information Commissioners Office.