Helping you find potentially suitable clinical trials
Identifying current clinical trials and providing support to assess whether they are potentially applicable to you.
Helping you find potentially suitable clinical trials
Identifying current clinical trials and providing support to assess whether they are potentially applicable to you
Clinical trials
How does our clinical trials service work?
We are currently developing this service to identify open clinical trials that may be suitable for you, and then helping to assess your potential suitability for individual trials. We can then provide you with relevant information on the trial(s) for discussion with your clinical team and, if appropriate, refer you through to the trial site(s).
We are building up the numbers of rare cancers we provide this service for as each rare cancer community grows within RareCan.
1. Join RareCan
Join the RareCan Community by creating a secure RareCan account.
2. Provide information
Upload your clinic letter, which we use to verify your diagnosis and obtain other relevant information.
3. Review trials
Look through the open clinical trials to identify any that you think you maybe suitable for and are interested in.
4. Book a screening call
Schedule a call with one of the RareCan team to talk through your potential suitability for the trials you are interested in.
Research partners
RareCan is building a network of partners to enable us accelerate research into rare cancers
The importance of well designed research in rare cancer
Modern medicine is built on the foundations of research. Without well-designed and carefully performed research projects and clinical trials we cannot be sure that new understandings of how diseases occur or ways in which they may be treated are correct..
FAQ
A clinical trial is a research study that tests a new medical approach, treatment, or device in human participants to evaluate its safety and effectiveness.
No. Our service is solely to give you information about trials you may be suitable for. Any decision to take part in a trial will be made by you (usually with the support of your clinical team) and only after you have been given all the information about the trial by the team running it.
Placebos may be used in some cancer clinical trials, but it is more normal for a trial to test a new treatment or combination of treatments against the standard available treatment. The use of a placebo in a clinical trial depends on several factors, such as the type of cancer being studied, the stage of the disease, and the available treatments. In some cases, a placebo-controlled trial may be unethical because a treatment with proven benefits is available. In other cases, a placebo may be used to determine if the new treatment being tested is superior to the standard of care or has added benefits. It’s important to understand the study design and what is being tested in a particular clinical trial before participating.
No. We provide this as a free service to our members.
Potentially. RareCan may be paid by the pharmaceutical company sponsoring a trial, or the contract research organisation that is running the trial on behalf of the sponsor, for helping identify people that may be suitable for their trial(s).
No. Our trials service aims to identify all open clinical trials that you might be suitable for, and help assess which one you might be suitable for.
We have just launched our clinical trials service and will be developing, improving and extending it as it is used by our members. Initially we are only able to provide the service for selected types of rare cancer – those with the largest communities in RareCan. As we get feedback we will develop the service and as our rare cancer communities grow we will role it out across our communities.
