In partnership with Neuroendocrine Cancer UK

We are delighted to have partnered with Neuroendocrine Cancer UK who have agreed to help us grow our community of members with neuroendocrine cancers. Growing this community will allow us to build a resource for reseachers which will make it easier for them to find participants for clinical trials and other research.

There are over 600 live clinical trials for cancer in the UK at the moment. Let us help you find the right trial for you.

RareCan is the only organisation in the UK that specialises in finding clinical trials for patients with rare cancer.

Cancer clinical trial finder

Information about neuroendocrine cancer

Also known as:

  • NETs
  • Neuroendocrine neoplasms (NENs)
  • or historically as carcinoid tumours

A word about naming (terminology).

This is a very diverse group of cancers, originating in a specific type of cell, present in and affecting many different organs and sites of the body – with no typical pattern of behaviour.

Neuroendocrine Cancers have had a variety of names since they were first identified in 1907, however, it has been agreed, by expert consensus – including the World Health Organisation (2017) – that they are called Neuroendocrine Neoplasms (NENs) : after the type of cell that they form in.

Neuroendocrine cells are found throughout the body and may produce certain hormones, or similar substances, to help body systems function healthily.

To continue reading, please visit our neuroendocrine cancer information pack.

Useful links:

Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a charity that provides support to those affected by neuroendocrine cancers. 

How does our clinical trial service work?

1. Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

2. Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

3. Receive bespoke report

We’ll provide you with a report on trials we’ve considered, which may be suitable for you, and what actions you should consider taking.

4. Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials

How it works

How does our clinical trials service work?

Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

Bespoke report

We’ll provide you with a report on trials we’ve considered, which may be suitable for you, and what actions you should consider taking.

Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials