In partnership with Sarcoma UK

We are delighted to have partnered with Sarcoma UK, a charity that supports those affected by soft tissue and bone sarcomas. Growing our own community of members with sarcoma diagnoses will allow us to build a resource for reseachers which will make it easier for them to find participants for clinical trials and other research.

Sarcoma UK

There are over 600 live clinical trials for cancer in the UK at the moment. Let us help you find the right trial for you.

RareCan is the only organisation in the UK that specialises in finding clinical trials for patients with rare cancer.

Cancer clinical trial finder

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If you’d rather do things over the phone, click the button below and we’ll phone you at a time that’s convenient to you.

For a much more detailed guide, please have a look at our myxofibrosarcoma information pack.

Myxofibrosarcoma

Also known as:

  • Myxoid malignant fibrous histiocytoma (old name – no longer used)
  • Myxoid MFH: (old name – no longer used)
  • Myxofibroblastic sarcoma:
  • MFS

What is myxofibrosarcoma?

Often seen as a painless, slow growing lump, MFS tumours tend to form in the connective tissues of the arms and legs close to the surface although they may be found deeper into the tissue. The name reflects a mixture of myxoid, or mucous containing cells and cells that look like fibrous connective tissue. They have many different genetic mutations which means tumour sequencing techniques are less useful in making a firm diagnosis. 

MFS can return aggressively after surgery, so surgery often takes a wide margin of tissue and is combined with radiotherapy.

How rare is myxofibrosarcoma?

Myxofibrosarcoma is one of the more common sarcomas, affecting 2-3 people per 100,000 each year.

Who does myxofibrosarcoma affect?

Myxofibrosarcoma usually affects older people, typically over 60, but cases are occasionally seen in younger people. There are slightly more cases in men, than in women.

Why is RareCan interested in myxofibrosarcoma?

RareCan is working to accelerate research into myxofibrosarcoma by making it easier for researchers to connect with people who have it. You can help us do this by becoming a RareCan member and sharing information with us about your myxofibrosarcoma diagnosis. We will then get in touch with you about any research opportunities that might be suitable for you.

Looking for a different cancer type?

Please visit our ‘rare cancer list’ to search for your cancer type 

Related links:

If you are looking for further support with myxofibrosarcoma we recommend:

Sarcoma UK

Sarcoma UK

Sarcoma UK is a charity for those with bone and soft tissue sarcoma diagnoses. They provide information on all types of sarcomas and have a patient support line to help assist with any queries and worries.

How does our clinical trial service work?

1. Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

2. Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

3. Receive bespoke report

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

4. Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials

Prefer to speak to someone?

If you’d rather do things over the phone, click the button below and we’ll phone you at a time that’s convenient to you.

How it works

How does our clinical trials service work?

Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

Bespoke report

We’ll provide you with a report on trials we’ve considered, which may be suitable for you, and what actions you should consider taking.

Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials

Prefer to speak to someone?

If you’d rather do things over the phone, click the button below and we’ll phone you at a time that’s convenient to you.