Gynaecological sarcoma

Also known as:

Gynaecological sarcoma is not a single cancer, but is the name for a group of sarcomas that include endometrial stromal sarcoma, undifferentiated endometrial sarcomas, leiomyosarcomas and rhabdomyosarcomas.

What are gynaecological sarcomas?

Gynaecological sarcoma refers to a type of cancer that originates in the female reproductive system. Unlike more common womb and ovarian cancers, these sarcomas involve the abnormal growth of cells in the connective or supportive tissues (muscles, ligaments etc) of the uterus, ovaries, cervix, vagina, or vulva.

For more information please refer to the information on individual sarcoma types.

How rare is gynaecological sarcoma?

Gynaecological sarcomas make up about 10% of all soft tissue sarcomas, making the incidence rate 0.7 per 100,000 people. Of these 85% affect the womb and 7% the ovaries.

Who does gynaecological sarcoma affect?

Gynaecological sarcoma can affect women of all ages, but it is more commonly diagnosed in older women. Certain risk factors have been associated with an increased likelihood of developing gynaecological sarcoma, including a history of radiation therapy to the pelvic region, exposure to certain chemicals, and genetic factors. Additionally, certain types of gynaecological sarcoma may be more common in women who have not given birth or who have a history of infertility.

Why is RareCan interested in gynaecological sarcomas?

RareCan is working to accelerate research into gynaecological sarcoma by making it easier for researchers to connect with people who have it. You can help us do this by becoming a RareCan member and sharing information with us about your gynaecological sarcoma diagnosis. We will then get in touch with you about any research opportunities that might be suitable for you.

Looking for a different cancer type?

Please visit our ‘rare cancer list’ to search for your cancer type¬†

Useful links

If you are looking for further support with gynaecological sarcoma we recommend the following websites:

Sarcoma UK

Sarcoma UK

Sarcoma UK is a charity for those with bone and soft tissue sarcoma diagnoses including gynaecological sarcoma. They provide information on all types of sarcomas and have a patient support line to help assist with any queries and worries.