In partnership with Sarcoma UK

We are delighted to have partnered with Sarcoma UK, a charity that supports those affected by soft tissue and bone sarcomas. Growing our own community of members with sarcoma diagnoses will allow us to build a resource for reseachers which will make it easier for them to find participants for clinical trials and other research.

Sarcoma UK

There are over 600 live clinical trials for cancer in the UK at the moment. Let us help you find the right trial for you.

RareCan is the only organisation in the UK that specialises in finding clinical trials for patients with rare cancer.

Cancer clinical trial finder

Fibrosarcoma

Also known as:

  • Fibroplastic sarcoma
  • There are two forms – Infantile fibrosarcoma and adult type fibrosarcoma.

What is fibrosarcoma?

Fibrosarcoma is a very rare type of sarcoma that develops in the fibrous tissues of the body, such as bones, tendons, and muscles. This type of tissue is found throughout the body, so fibrosarcoma can occur in any part. The exact causes of fibrosarcoma are not known, but there are some risk factors that have been identified. These include a history of radiation therapy, exposure to certain chemicals, and genetic factors. There is an exceptionally rare congenital form caused by a known change to the chromosomes that is seen at birth or soon after.

How rare is fibrosarcoma?

Fibrosarcoma makes up around 1% of all soft tissue sarcomas, so is present at 0.66 cases per 100,000. The recorded incidence is dropping as better diagnosis means that many tumours that would once have been called fibrosarcomas are now identified as a different sarcoma.

Who does fibrosarcoma affect?

Fibrosarcoma can affect people of any age, but it is more common in middle-aged and older adults. Men are affected slightly more often.

Why is RareCan interested in fibrosarcoma?

RareCan is working to accelerate research into fibrosarcoma by making it easier for researchers to connect with people who have it. You can help us do this by becoming a RareCan member and sharing information with us about your fibrosarcoma diagnosis. We will then get in touch with you about any research opportunities that might be suitable for you.

Looking for a different cancer type?

Please visit our ‘rare cancer list’ to search for your cancer type 

Useful links

If you are looking for further support with fibrosarcoma we recommend the following websites:

Sarcoma UK

Sarcoma UK

Sarcoma UK is a charity for those with bone and soft tissue sarcoma diagnoses including fibrosarcoma. They provide information on all types of sarcomas and have a patient support line to help assist with any queries and worries.

BCRT logo

Bone Cancer Research Trust

Bone Cancer Research Trust is a charity that offers support and information to those affected by bone cancers, including fibrosarcoma. 

Related links:

How does our clinical trial service work?

1. Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

2. Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

3. Receive bespoke report

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

4. Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials

How it works

How does our clinical trials service work?

Join RareCan

Create an account and answer a few simple questions about your diagnosis and treatment; view the trials that may be suitable for you

Get expert support

Our experienced team will work directly with you to screen you against the complex criteria for all open treatment trials. This takes 2-3 weeks.

Bespoke report

We’ll provide you with a report on trials we’ve considered, which may be suitable for you, and what actions you should consider taking.

Keep in touch

Keep us up to date with your treatment and we’ll keep you up to date with potentially suitable trials