Also known as:
- Fibroplastic sarcoma
- There are two forms – Infantile fibrosarcoma and adult type fibrosarcoma.
What is fibrosarcoma?
Fibrosarcoma is a very rare type of sarcoma that develops in the fibrous tissues of the body, such as bones, tendons, and muscles. This type of tissue is found throughout the body, so fibrosarcoma can occur in any part. The exact causes of fibrosarcoma are not known, but there are some risk factors that have been identified. These include a history of radiation therapy, exposure to certain chemicals, and genetic factors. There is an exceptionally rare congenital form caused by a known change to the chromosomes that is seen at birth or soon after.
How rare is fibrosarcoma?
Fibrosarcoma makes up around 1% of all soft tissue sarcomas, so is present at 0.66 cases per 100,000. The recorded incidence is dropping as better diagnosis means that many tumours that would once have been called fibrosarcomas are now identified as a different sarcoma.
Who does fibrosarcoma affect?
Fibrosarcoma can affect people of any age, but it is more common in middle-aged and older adults. Men are affected slightly more often.
Why is RareCan interested in fibrosarcoma?
RareCan is working to accelerate research into fibrosarcoma by making it easier for researchers to connect with people who have it. You can help us do this by becoming a RareCan member and sharing information with us about your fibrosarcoma diagnosis. We will then get in touch with you about any research opportunities that might be suitable for you.
If you are looking for further support with fibrosarcoma we recommend the following websites:
Sarcoma UK is a charity for those with bone and soft tissue sarcoma diagnoses including fibrosarcoma. They provide information on all types of sarcomas and have a patient support line to help assist with any queries and worries.
Bone Cancer Research Trust
Bone Cancer Research Trust is a charity that offers support and information to those affected by bone cancers, including fibrosarcoma.