Also Known As:

  • Bile Duct Cancer
  • Cancer of the Bile Duct

Why is RareCan interested in Cholangiocarcinoma?

RareCan is working to accelerate research into Cholangiocarcinoma by making it easier for researchers to connect with people who have this and other rare forms of cancer. You can help us do this by becoming a RareCan member and sharing information with us about your diagnosis. We will then get in touch with you about any research opportunities that might be suitable for you.

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What is Cholangiocarcinoma?

Cholangiocarcinoma is a type of rare cancer that forms in the bile ducts. It is an adenocarcinoma, which is a type of cancerous tumour that can occur in several parts of the body. 

How rare is Cholangiocarcinoma?

Cholangiocarcinoma or Bile Duct Cancer has around 1,000 new cases per year in the UK. 

Who does Cholangiocarcinoma affect?

Cholangiocarcinoma can occur at any age but usually affects people over the age of 50. 

Other Adenocarcinomas

Cholangiocarcinoma is a type of adenocarcinoma. As well as in the bile ducts, adenocarcinomas can occur in several other parts of the body.

 

Useful Links:

If you have Cholangiocarcinoma/Bile Duct Cancer and are looking for support, we recommend the following websites:

AMMF

AMMF aims to raise awareness of Cholangiocarcinoma or Bile Duct Cancer and provide information and support to those affected. 

Opportunities for Members with Cholangiocarcinoma

BioResource

The RareCan BioResource

Donating your samples for medical research

Joining RareCan gives you the ability to donate your tissue samples to the BioResource for medical research. Please note that signing up to RareCan does not commit you to donating tissue and you can cancel your membership at any time. If you have Cholangiocarcinoma (Cancer of the Bile Duct) and would like to find out more, please click the button below.

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