Rare cancer list

RareCan is particularly interested in the rare cancers listed below. This list is not exhaustive and it is a work in progress. We are in the process of adding pages with detailed information about each of these rare cancers.  The first of these have been created for oesophageal cancer, stomach cancer, Essential Thrombocythaemia, Langerhans Cell HistiocytosisMalignant Peripheral Nerve Sheath Tumours, Gastro Intestinal Stromal Tumours, Multiple Myeloma, and Primary Myelofibrosis.

Do you have one of the cancers listed below?

A to Z of rare cancers

Acinar cell carcinoma of pancreas
Acute myeloid leukaemia
Acute promyelocytic leukaemia (AML t(15;17) with variants)
Adenocarcinoma with variants of bladder
Adenocarcinoma with variants of cervix uteri
Adenocarcinoma with variants of fallopian tube
Adenocarcinoma with variants of gallbladder and EBT
Adenocarcinoma with variants of liver and IBT
Adenocarcinoma with variants of middle ear
Adenocarcinoma with variants of oesophagus
Adenocarcinoma with variants of ovary
Adenocarcinoma with variants of pelvis, ureter and urethra
Adenocarcinoma with variants of penis
Adenocarcinoma with variants of small intestine
Adenocarcinoma with variants of thymus
Adenocarcinoma with variants of trachea
Adenocarcinoma with variants of vulva and vagina
Adenoid cystic carcinoma of corpus uteri
Adnexa Adenocarcinoma with variants of eye and adnexa
Adnexal carcinoma of skin
Alveolar rhabdomyosarcoma of soft tissue
Astrocytic tumours of CNS
Astrocytic tumours of cranial and peripheral nerves, autonomic nervous system
Atypical chronic myeloid leukaemia BCR/ABL negative
Basaloid carcinoma of rectum
Bile duct cystadenocarcinoma of IBT
Bronchiolo-alveolar carcinoma of lung
Carcinoma of adrenal gland
carcinoma of pancreas and digestive tract
Endocrine carcinoma of skin
Essential Thrombocythaemia
Carcinoma with osteoclast-like giant cells of pancreas
Carcinomas of parathyroid gland
Carcinomas of pituitary gland
Carcinomas of thyroid gland (medullary carcinoma included)
Cholangiocarcinoma of IBT
Chondrogenic sarcomas
Choriocarcinoma of placenta
Choroid plexus carcinoma of CNS
Chronic Myeloid Leukaemia
Chronic myelomonocytic leukaemia
Clear cell adenocarcinoma of ovary
Diffuse and follicular B lymphoma
Embryonal rhabdomyosarcoma of soft tissue
Embryonal tumours of CNS
Embryonal tumours of cranial and peripheral nerves, autonomic nervous system
Endocrine carcinoma of thyroid gland
Ependymal tumours of CNS
Ependymal tumours of cranial and peripheral nerves and autonomic nervous system
Epithelial tumour of male breast
Epithelial tumours of major salivary glands
Epithelial tumours, adamantinoma
Ewing’s family of tumours
Ewing’s family tumours of soft tissue
Extragonadal germ cell tumours
Extragonadal malignant/immature teratomas
Gastrointestinal stromal sarcoma
Germ cell tumour of ovary
Hairy cell leukaemia
Hepatoblastoma
Hepatocellular carcinoma of liver and IBT
Histiocytic and dendritic cell neoplasms
Hodgkin lymphoma
Infiltrating duct carcinoma of prostate
Intestinal type adenocarcinoma of nasal cavity and sinuses
Intraductal papillary mucinous carcinoma invasive of pancreas
Kaposi sarcoma
Langerhans Cell Histiocytosis
Large cell carcinoma of lung
Lymphoepithelial carcinoma of nasal cavity and sinuses
Lymphoepithelial carcinoma of thymus
Malignant melanoma of mucosa
Malignant melanoma of uvea
Malignant meningiomas
Malignant Peripheral Nerve Sheath Tumour
Malignant thymoma
Malignant/Immature teratomas of ovary
Mammary Paget’s disease of breast
Mast cell tumour
Mesothelioma of peritoneum and tunica vaginalis
Mesothelioma of pleura and pericardium
Metaplastic carcinoma of breast
Mixed endocrine and exocrine carcinoma
Mixed epithelial and mesenchymal tumours of uterus
Mixed epithelial/mesenchymal tumours of ovary
Mucinous adenocarcinoma of ovary
Mucinous cystadenocarcinoma of pancreas
Myelodysplastic syndrome with 5q syndrome
Nephroblastoma
Neuroblastoma and ganglioneuroblastoma
Non-seminomatous testicular cancer
Notochordal sarcomas, chordoma
of anal canal Adenocarcinoma with variants of anal canal
Oesophageal cancer
Oligodendroglial tumours of CNS
Osteogenic sarcoma

Other high grade sarcomas (fibrosarcoma, malignant fibrous histiocytoma)
Other myelodysplastic syndrome
Other myeloproliferative neoplasms
Other soft tissue sarcomas of genitourinary tract
Other T cell lymphomas and NK cell neoplasms
Ovarian cancer
Paget’s disease of anal canal
Paget’s disease of vulva and vagina
Pancreatoblastoma
Papillary adenocarcinoma of nasopharynx
Paraganglioma
Paratesticular adenocarcinoma with variants
Plasmacytoma/multiple myeloma (and heavy chain diseases)
Primary Myelofibrosis
Pseudomyxoma Peritonei (PMP)
Pulmonary blastoma
Retinoblastoma
Salivary gland type tumours of bladder
Salivary gland type tumours of breast
Salivary gland type tumours of head and neck
Salivary gland type tumours of lung
Salivary gland type tumours of oesophagus
Salivary gland type tumours of prostate
Salivary gland type tumours of trachea
Salivary gland-type tumours of pelvis, ureter and urethra
Salivary gland-type tumours of stomach
Sarcomatoid carcinoma of lung
Seminomatous testicular cancer
Serous cystadenocarcinoma of pancreas
Sex cord tumours of ovary
Soft tissue sarcoma of brain and other parts of nervous system
Soft tissue sarcoma of breast
Soft tissue sarcoma of head and neck
Soft tissue sarcoma of heart
Soft tissue sarcoma of limbs
Soft tissue sarcoma of mediastinum
Soft tissue sarcoma of paraorbit
Soft tissue sarcoma of paratestis
Soft tissue sarcoma of pelvis
Soft tissue sarcoma of retroperitoneum and peritoneum
Soft tissue sarcoma of skin
Soft tissue sarcoma of superficial trunk
Soft tissue sarcoma of uterus
Soft tissue sarcoma of viscera
Solid pseudopapillary carcinoma of pancreas
Special types of adenocarcinoma of breast
Spermatocytic seminoma
Squamous cell carcinoma of gallbladder and EBT
Squamous cell carcinoma of thymus
Squamous cell carcinoma spindle cell type of kidney
Squamous cell carcinoma with variants
Squamous cell carcinoma with variants of bladder
Squamous cell carcinoma with variants of cervix uteri
Squamous cell carcinoma with variants of colon
Squamous cell carcinoma with variants of corpus uteri
Squamous cell carcinoma with variants of eye
Squamous cell carcinoma with variants of hypopharynx
Squamous cell carcinoma with variants of kidney
Squamous cell carcinoma with variants of larynx
Squamous cell carcinoma with variants of lip
Squamous cell carcinoma with variants of liver and IBT
Squamous cell carcinoma with variants of middle ear
Squamous cell carcinoma with variants of nasal cavity and sinuses
Squamous cell carcinoma with variants of nasopharynx
Squamous cell carcinoma with variants of oesophagus
Squamous cell carcinoma with variants of oral cavity
Squamous cell carcinoma with variants of oropharynx
Squamous cell carcinoma with variants of pancreas
Squamous cell carcinoma with variants of pelvis, ureter and urethra
Squamous cell carcinoma with variants of penis
Squamous cell carcinoma with variants of prostate
Squamous cell carcinoma with variants of small intestine
Squamous cell carcinoma with variants of stomach
Squamous cell carcinoma with variants of trachea
Squamous cell carcinoma with variants of vulva and vagina
Squamous cell carcinoma with variantsof rectum
Stomach cancer
T cutaneous lymphoma (Mycosis fungoides, Sezary syndrome)
Teratoma with malignant transformation
Testicular sex cord cancer
Transitional cell carcinoma of corpus uteri
Transitional cell carcinoma of pelvis, ureter and urethra
Transitional cell carcinoma of prostate
Undifferentiated carcinoma of cervix uteri
Undifferentiated carcinoma of liver and IBT
Undifferentiated carcinoma of lung
Undifferentiated carcinoma of nasal cavity and sinuses
Undifferentiated carcinoma of oesophagus
Undifferentiated carcinoma of stomach
Undifferentiated carcinoma of thymus
Undifferentiated carcinoma of vulva and vagina
Vascular sarcomas
Well differentiated endocrine carcinoma of lung
Well differentiated endocrine tumours, atypical carcinoid
Well differentiated endocrine tumours, carcinoid
Well differentiated functioning endocrine

Can't see your cancer type on this list?

If your cancer isn’t listed but you think it should be, we would love to hear from you. Please let us know your rare cancer type by clicking the button below and completing the short forms that follow. We are continuously updating our list and it may just be that your rare cancer hasn’t been added yet.