About Us

What is rarecan?

RareCan places patients and data at the heart of research, including the discovery of better ways to prevent, diagnose and treat rare cancer.

About RareCan

Accelerating Rare Cancer Research

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Our VAlues

We are an organisation that exists to improve outcomes for people with rarer forms of cancer and everything we do is governed by our core values.

Impactful

Everything we do is led by and aimed at having a positive impact on people affected by rare cancers.

Trustworthy

We are transparent about how we operate, work with integrity and to the highest ethical standards, keeping our members’ data safe and secure.

Determined

We are passionate about making a difference and impatient to see things change for the better.

Brave

We are forthright and ambitious about challenging the status quo, and not afraid to be audacious on behalf of, and with the permission of our members.

Inclusive

We work to include everyone affected by rare cancers and are open to all researchers with ethically approved research studies.

Our Team

Andy Hall

ANDY HALL

Chief Scientific Officer

Claire Heron

CLAIRE HERON

Non-Executive Director

Piers Kotting - RareCan CEO

PIERS KOTTING

Chief Executive Officer

Simon Allocca

SIMON ALLOCCA

Chief Financial Officer

Amanda Gibbon

AMANDA GIBBON

Non-Executive Chair

Anita Cooper

ANITA COOPER

Non-Executive Director

DEBORAH COPLAND

Communications Specialist

Debs has over 20 years’ experience of communications, marketing and project management within the retail sector including Marks and Spencer, Home Retail Group and Monsoon Accesorize. She has a breadth of experience engaging with key stakeholders across challenging programs of change, and brings with her enthusiasm every step of the way.

Phoebe Lee

PHOEBE LEE

CRM & Automation Officer

Phoebe is a CRM Consultant and Automation Architect who specialises in automative solutions to organisation challenges. Prior to joining the team, Phoebe was a charity Director and a Head of Digital Solutions. This experience equipped her as a specialist in implementing CRM systems with a strong focus on impact and community engagement.

STEVEN MCGURK

Community Development Officer

Steven is a digital marketing expert who specialises in Search Engine Optimisation and online advertising. Before joining RareCan, Steven worked as a freelancer and at marketing agencies in the UK, Belgium and Singapore for clients across a wide variety of sectors.

ABOUT RARECAN LIMITED

RareCan Limitedd is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan, and ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, the profits of which will be fed back into the rare cancer communities we serve.

Our Core Values

RareCan Limited is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan, and ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, the profits of which will be fed back into the rare cancer communities we serve.

RareCan Limited is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan, and ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, the profits of which will be fed back into the rare cancer communities we serve.

Company Structure

RareCan Limited is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan, and ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, the profits of which will be fed back into the rare cancer communities we serve.

How we Make Money

RareCan Limited is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan, and ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, the profits of which will be fed back into the rare cancer communities we serve.

I have a cancer diagnosis

If you have a cancer diagnosis or you are the parent of a child with a cancer diagnosis, please start here.

I'm a supporter

If you’re a friend or family member of someone with cancer, a nurse, an oncologist, an activist, a fundraiser or you’d simply like to help, please start here.

I'm a researcher

If you are interested in setting up a research project or clinical trial aimed at improving the care people affected by rare cancer receive please start here.