What is rarecan?
RareCan places patients and data at the heart of research, including the discovery of better ways to prevent, diagnose and treat rare cancer.
Accelerating Rare Cancer Research
We are an organisation that exists to improve outcomes for people with rarer forms of cancer and everything we do is governed by our core values.
Everything we do is led by and aimed at having a positive impact on people affected by rare cancers.
We are transparent about how we operate, work with integrity and to the highest ethical standards, keeping our members’ data safe and secure.
We are passionate about making a difference and impatient to see things change for the better.
We are forthright and ambitious about challenging the status quo, and not afraid to be audacious on behalf of, and with the permission of our members.
We work to include everyone affected by rare cancers and are open to all researchers with ethically approved research studies.
Debs has over 20 years’ experience of communications, marketing and project management within the retail sector including Marks and Spencer, Home Retail Group and Monsoon Accesorize. She has a breadth of experience engaging with key stakeholders across challenging programs of change, and brings with her enthusiasm every step of the way.
CRM & Automation Officer
Phoebe is a CRM Consultant and Automation Architect who specialises in automative solutions to organisation challenges. Prior to joining the team, Phoebe was a charity Director and a Head of Digital Solutions. This experience equipped her as a specialist in implementing CRM systems with a strong focus on impact and community engagement.
Community Development Officer
Steven is a digital marketing expert who specialises in Search Engine Optimisation and online advertising. Before joining RareCan, Steven worked as a freelancer and at marketing agencies in the UK, Belgium and Singapore for clients across a wide variety of sectors.
ABOUT RARECAN LIMITED
RareCan Limited is an organisation set up for the purpose of speeding up research and ultimately improving outcomes for people with rarer forms of cancer. We have adopted a legal structure that we believe achieves the right balance between providing an attractive investment opportunity to stimulate and maintain the financial backing required to set up and grow RareCan in a sustainable manner, as well as ensuring that we remain true to our purpose. Alongside this, we have plans to start a social benefit trust, which will be funded by the profits generated by RareCan to be fed back into the rare cancer communities we serve.
Our Core Values
RareCan Ltd will benefit members by enabling people to share, manage and protect their personal data. We believe that personal information is valuable, vulnerable and private. We are committed only to undertake activities which will contribute to the company’s stated purpose as set out in our Articles of Association and to ensure that any personal benefits are a by-product of the activities of the company.
As we grow we will work towards becoming a B Corporation. B Corporations are businesses that balance purpose and profit. They are required to consider the impact of their decisions on their workers, customers, suppliers, community and the environment. B Corporations meet the highest standards of verified social and environmental performance, public transparency and legal accountability.
RareCan Ltd is a company limited by shares registered in England, Company Number 12844377. Our shareholders are our directors, staff and investors that provide the capital needed to make RareCan a success. The company has a board of directors made up of the four founding directors and two non-executive directors.
Our Business Model
RareCan generates its income from researchers who use our platform. We charge a fee for access to the data we hold and the income this generates is then reinvested back into RareCan. These fees are determined by the type of research or project being undertaken, the data being requested to undertake that research or project and the nature of the funder of the research.
I have a cancer diagnosis
If you have a cancer diagnosis or you are the parent of a child with a cancer diagnosis, please start here.
I'm a supporter
If you’re a friend or family member of someone with cancer, a nurse, an oncologist, an activist, a fundraiser or you’d simply like to help, please start here.
I'm a researcher
If you are interested in setting up a research project or clinical trial aimed at improving the care people affected by rare cancer receive please start here.